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  1. Terri Madden says:

    Beautiful. Parker is a special boy. I am here to help any way I can. Love you!

    1. Thanks Terri, he truly is a special kid and he loves you for sure. Looking forward to our visit this weekend.

  2. Wow, Sonya! This was a powerful post, and many will benefit from you sharing your story here. My heart breaks that you were not able to get the proper diagnosis sooner.

    What you said is SO true…”Know that the doctors are not always right and you have a right to a second opinion.” Yes! As a society, we sometimes think doctors are smarter or more well educated than we “non physicians” are. The bottom line is that they don’t spend the whole day with you or your children to understand your baseline, and they make mistakes.

    I pray that you’re now able to get the proper care and treatment for your son. He’s lucky you were tenacious and trusted your mom instincts. Thank you for sharing your story.

    1. Crissy thank you so much. I had really been feeling God calling me to share our story so I hope that it will benefit someone who may be going through the same thing. Hoping to inspire others in their daily lives as well as their homes. I appreciate you taking the time to read our story and I appreciate the prayers.

  3. Julie Briones says:

    I’m so glad you shared this, Sonya. So, the diagnosis was right after Haven last year? That’s crazy! I don’t remember you sharing this with the rest of the angels. Let me know if you ever want to talk… or cry… or laugh! You’re doing a great job, and I’ll remember to be praying for this journey!

    1. Thank you Julie. It was right after Haven, though I had obviously known myself for some time. I don’t remember if I shared it in our group or not, it is somewhat of a blur but it feels good to get it out. I so appreciate your thoughts and prayers.

  4. Susan Galtelli says:

    For some reason, I’m just seeing this post. So glad you guys finally got some answers. Parker is an amazing kid, and is so lucky to have a mom to fight for him. Stay strong my friend. Call me sometime.❤️

    1. Thank you so much Susan. We have so much to catch up on. Once I get through the college move in I should have some free time.

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